Events
Kate, age 9,
living with
Rett syndrome
Discovering DAYBUE™ (trofinetide) Caregiver Series
The Discovering DAYBUE Caregiver Series features educational sessions, presented by Acadia Pharmaceuticals Inc., to learn about DAYBUE, the first and only FDA-approved treatment for Rett syndrome.
Educational sessions will include:
General information about what DAYBUE is, how it was studied, clinical trial results, and possible side effects
An overview of patient support services from Acadia Connect®
A conversation with a caregiver of an individual living with Rett syndrome
An opportunity to ask questions during a Q&A after the session
Date: Thursday, January 11, 2024
Time: 7:00 PM ET
Where: Virtual (Register below)
This 90-minute session includes:
Clinical presentation by Carrie Buchanan, MD, Developmental-Behavioral Pediatrics at Greenwood Genetic Center, Greenwood, SC
Presentation by a Family Access Manager, Acadia Pharmaceuticals
Conversation with three caregivers of individuals currently taking DAYBUE
Past events
Discovering DAYBUE Caregiver Webinar
Discovering DAYBUE is an educational webinar for caregivers who may be considering or looking to learn more about treatment with DAYBUE for their loved one.
This one-hour session includes:
Clinical overview of DAYBUE from Dr. Carrie Buchanan, Developmental Behavioral Pediatrics, Greenwood Genetic Center, including general information about DAYBUE, how it's been studied, clinical trial results and possible side effects
Overview of our patient support services through Acadia Connect and information on how our team supports families
throughout their journeys with DAYBUEConversation with a caregiver of an individual living with Rett syndrome
Support by your side
Acadia Connect is a patient and family support program that connects you and your family with educational support and resources throughout the DAYBUE treatment journey.
Call 1-844-737-2223, Monday–Friday, 8:00
